Rare Disease

Proclamation of Rare Disease Status

Eligibility

  • A physician diagnoses the rare disease
  • The physician reports to the Health Promotion Administration
  • Health Promotion Administration reviews and approves the cas
  • Patient obtains the rare disease status

Major Illness and Injury Status

General Major Injury Status:

  • A physician diagnoses the major illness and injury
  • patient reports the major illness and injury to the National Health Insurance Administration
  • National Health Insurance Administration approves the review
  • patient obtains the certificate of major illness and injury

2. Rare disease & major illness and injury status (category 30 within the scope of major injury):

  • Patient obtains the rare disease status approved by the Health Promotion Administration
  • patient applies for the major illness and injury status from the National Health Insurance Administration
  • National Health Insurance Administration approves the application after reviewing the data (no professional physician review required)
  • patient obtains the certificate of major illness and injury

Difference between the Two：

Special Review – The National Health Insurance Administration will require professional review for the former, but not the latter since it is directly reviewed and approved by the National Health Insurance Administration

Effective Date – The former is the health insurance acceptance date. The latter is the date the physician notified the National Health Insurance Administration.

Validity Period – The former is 1 year, 3 years, 5 years, or permanent according to the major illness and injury categories. The latter is a permanent major illness and injury status.

Insurance Co-payment Exemption (Only the co-payment related to the major illness and injury is exempted, for example: if a person holding a certificate of major illness and injury undergoes surgery due to a car accident, the co-payment for the hospital surgery treatment is not exempt)

Application Notification by Medical Personnel：

  1. Obtain the Official Documents and Contact the Taiwan Foundation for Rare Disorders
  2. Please visit the “Rare Disease Integrated Information Management System” page at https://raredr.hpa.gov.tw/Account/Apply (PS. only a physician can apply)
  3. After the case has been filed, you may directly submit the case information report provided by the report opinion form.
  4. When the review is passed, the Health Promotion Administration will send a letter to notify the applying physician.
  5. Then the physician can help the case to apply to qualify for the major illness and injury status.

For details on application information, please visit the services area of the Taiwan Foundation for Rare Disorders website at http://www.tfrd.org.tw/tfrd/service_a